Skip to main content

Naomi’s Story, Part 2: When We Learned About Her Eye

After the struggle with Naomi’s shoulder at birth, life slowly settled. As new parents, we were learning step by step, enjoying every moment with our beautiful first child. We thought the hardest part was behind us.

But as time passed, we began to notice something different about her eyes. At first, we told ourselves it was nothing serious, something that would improve as she grew. When Naomi turned one, during a hospital visit, the doctor examined her and said it was a “lazy eye” that would correct itself.

We felt some relief then. The first optician we met even recommended glasses. We held on to that hope, believing that once she wore them, everything would be fine. But the glasses never worked.

We tried again and again to book appointments at the general hospital. Long queues, lack of specialists, and the weight of life in Lagos as a young couple made it all so overwhelming. Still, we carried on, hoping for change.

By the time Naomi turned two, our worries grew heavy. She still could not see clearly. She had to move very close to recognize objects. She could not identify us from just 10 feet away. While walking, she often bumped into objects. When running, she would hit things. Each time, our hearts broke. Watching her struggle with something as simple as walking safely was more painful than we could bear.

I could not keep quiet anymore. I spoke to one of my senior colleagues at work. With concern, he listened as I explained the pain my wife and I were carrying and our deep fear about how Naomi would cope when school started. He gave me the contact of a doctor at the University College Hospital (UCH) in Ibadan, one of the best teaching hospitals in Nigeria.

The very next day, we set out early in the morning. At 5 a.m., my wife, Naomi, her little sister Olive, and I left Lagos for Ibadan. The journey was long, nearly 130 kilometers, and traffic delayed us until about 10 a.m. When we arrived, we registered and waited with anxious hearts. Around 1 p.m., we finally met the specialist.

She examined Naomi carefully. The first machine showed nothing. Then she used drops to dilate Naomi’s eyes. The drops stung, and our little girl cried uncontrollably. Watching her cry in pain tore us apart, but we held her close and calmed her until she was ready again.

Later, in a dark room, the specialist revealed what she had seen. She told us she had never seen a case like Naomi’s before. She called in three senior opticians to look again. Together, they explained that the back of Naomi’s eyes had not formed properly before birth.

In that moment, my world stopped. I had believed they would simply prescribe glasses to fix her vision, or at worst, suggest a minor surgery. Instead, the doctor told us no glasses could correct her sight, only support her a little.

She showed us images of what a healthy eye should look like, and then what Naomi’s looked like. The difference was clear and painful to see. She asked if we had any family history of eye problems. We said no. None of our families had ever faced this.

I was frozen with shock. My wife sat quietly, holding Naomi tightly. Inside, I wanted to cry, but I could not. I needed to stay strong for her, for both of them. I carried the weight of silent tears that day.

As parents, nothing prepares you for a moment when doctors tell you your child will live with something no treatment can fix. All I could think of was her future, her schooling, her dreams. I feared what life would mean for her. Yet when I looked at Naomi, I saw the same brave, beautiful girl who smiled at us from the beginning. She was still full of life, still full of strength.




Comments

  1. Deeply moving. To see the 'brave, beautiful girl' beyond the diagnosis is the greatest gift a parent can give. Sending so much love to Naomi and your family.

    ReplyDelete

Post a Comment

Popular posts from this blog

Our New Beginning: Naomi’s Story pt1

On March 11, 2015, my wife Treasure and I welcomed our first child, Naomi, in Lagos, Nigeria. Holding her in my arms was one of the happiest moments of my life. She was strong, beautiful, and full of promise. Her name, Naomi, was chosen with purpose. To us, it means delight and blessing. She was the beginning of our family’s story, and from the start she showed a strength that continues to inspire us. Her birth was not as we expected. She weighed over 5kg, and complications meant the doctors had to assist with delivery. In the process, her shoulder was dislocated. We did not know immediately. After 48 hours we noticed something was wrong and asked the doctors. That was where her first journey of pain began. At just four days old, Naomi’s tiny shoulder was put in a cast by a child orthopedist. Every visit was painful to watch. My wife and I cried many times, and some days I could not bear to take her back because I did not want to see her cry again. Still, we pushed forward. Even in ...

Naomi’s Story, Part 5: Awareness or Support?

  In 2016 and 2017, I started searching for awareness and support within Nigeria. I called hospitals, sent emails, and searched social media for anything related to Coloboma. Every response I got was silence. No group. No foundation. No awareness campaign. It felt like the condition did not exist in our country. I remember walking into one of the major eye centres in Lagos, hoping to meet other parents like me. The doctors told me they had seen children with Coloboma before, but no one had ever formed a support group or association. There was no record, no follow-up, no awareness. It broke me. In the UK and US, families were coming together, learning from one another, and supporting their children. In Nigeria, parents were isolated, each carrying their burden in silence. That gap became my mission. I decided I would not let Naomi’s story end in silence. If awareness did not exist, we would start it. We continued visiting hospitals for second and third opinions. Most doctors said th...